As we move into this Holiday Season, I can't help but feel a huge hole in my life. My dad loved Christmas. He loved everything about it. Last year, he wasn't doing well at all. In fact, we were told we wouldn't have him for Christmas. As I look back at the blog during that time, I didn't go into much detail about how bad he really was. When he had pneumonia, the doctors told us that he wouldn't live more than 24 hours. I don't know why I couldn't say that here, I guess it was because my dad never gave up hope. Even after we called our entire family and his closest friends to the ICU because we were told he only had hours to live, he was still cracking jokes and keeping everyone on their toes. He lived through death. Wes, Brad, and Mike - I will never forget that day. What you did for my father was incredible and I can't thank you enough for that memory.

A Life In Granite

It's taken us quite a while to finish his marker... partly due to being busy but I think mostly because it's just so final. The stone was laid last week on his birthday. We're happy with it, even if we're not happy it exists. I have a couple stories to share about that day but don't have time to post them today so look for that later this week.

Happy Birthday, Dad.

I haven't known what to do with this blog in the last few months. I look at it quite often. I look back at where we were a year ago. September was a great month for my dad. Probably the best he had during the transplant process last year.

Today is my dad's birthday. If he was alive, he'd be 56 years old.

I remember many of my father's birthdays. When I was younger, we used to celebrate fall birthdays at Enchanted Village. We'd get our entire extended family on that huge gunny sack slide and race down. One time, my grandma had an accident. I remember my dad thinking that was one of the funniest things he'd ever seen but then again, he was always laughing, always having fun… During my 4 years of high school, I got to celebrate my dad's birthday publicly. Usually trying to involve some sort of humiliation. Somehow, trying to embarrass him always came back to me being embarrassed. He was skilled that way.

I remember his last birthday well - He, being Ken Waite, went to work. He loved his job at the college. That job was meant for him and he wanted to do it well. Anyone that knew my father, knew he was attached to his phone. Since Washington State had made it illegal to talk on the phone while driving, it made sense to get him a bluetooth headset for his birthday. It was fun to watch him figure out how to use it. He wasn't always gifted with technology but he could manage.

Honestly, last year at this time, I really thought he was on track to beat cancer. A year prior to last, he had began his treatment for lymphoma for the last time. This year, we are learning to live daily life without him. I still don't feel like I know what that really looks like and to be quite honest, I don't want to. The first few months were a whirlwind, once things calmed down, summer was here and life got busy. Now, over 8 months later, we hurt. The wounds of his death seem fresh; more so than months prior. The memories of his life are often clouded by the weeks leading up to his death. I hate focusing on those times because they didn't represent the man I knew my whole life… yet, it was him: working. fighting. leading.

We're celebrating his birthday today. It will be different without him this year but he taught us how to really enjoy life and so we intend to honor that today (and always). Wherever you are and in whatever your doing today; take a moment ... enjoy where you are... remember what matters... and maybe, say Happy Birthday to Ken.

Happy Birthday, Dad.

***If you are in Aberdeen, feel free to stop by Billy's tonight around 9:00pm - we'll be raising a glass to Ken!***

I Always Wanted To Be Like My Dad.

As I have reflected on the countless memories I had in the 28 years I experienced with my father, one of the first things I thought of was the bucket head band. It also counts as one of my earliest memories. As seen in the photo below, we were all in fact, bucket heads. I was the drummer, Marc was the kazoo player and my dad, the singer/band leader. I remember so vividly prancing around the house in our "band uniforms" and feeling like we were really onto something! I remember looking to my dad as the leader, trying to mimic him. I always wanted to be like my dad.

When I was growing up, my dad played on the slow pitch team, the Aro Glass Clubbers. They were (and still are) a phenomenal team. I spent many summers as a child, traveling around, rallying rally cans and singing "Run Around Sue" after every victory. Often times, I'd go into the dugout to solicit money for candy during the games (I was a daddy's girl!) and remember one time specifically in Bremerton where I had done just that and before I could finish my plea, it was my dad's turn at bat. I sat in the dugout kicking dirt around while he was on deck and when he got up to bat, he hit a home run on the first pitch. I stood up and peered through the fence and watch him round the bases. When he got to third base, he made eye contact with me and smiled. I ran out of the dugout and got in line behind the other players to give the appropriate post-home run high five. I can still see him in my head at that moment. When he got to me, he picked me up and twirled me around while people were cheering. He was a hero. I didn't ever get to the candy solicitation, I just left that dugout smiling. My dad was so cool and I wanted to be like him.

As I got into high school, having your dad around everyday was a little less cool than having him hit home runs. In fact, it was often embarrassing. From high school dances, to walking the halls from class to class, he was always there. He knew when I was late, he knew when I got an A, he knew when I had a crush, he knew when I was having a hard day. One of my favorite memories with my dad in high school was spirit week. Being my father's daughter, I loved school spirit. Beginning my freshman year, I took spirit week to the extreme and my dad was always there, egging me on. Our favorite day was of course, blue and gold day. By the time my junior year came around, we were having to get pretty creative with the outfits. Having been a coach for over 20 years, he had quite the selection of blue and gold. I remember him getting a box out of the attic with a bunch of old uniforms and giving me a great AHS "track jacket" to wear. He had a solution for everything! He even would paint paw prints on my face. Even though he was embarrassing, I wanted to be like him.

In more recent years, I've come to respect my dad for his work ethic and consistent motivation to be his best. A few months before his death, we were sitting in the family room watching Perry Mason during lunch. He had come home from the college to eat and take a nap and I could tell he was totally exhausted. I suggested that maybe he stay home the afternoon and rest but he insisted that he go back to work because he had so much to get done before beginning another round of inpatient chemo the next week in Seattle. Then, quietly, he said "I wish I could do more as AD. I know I'm just not doing enough and I want to carry my share." I wanted to respond quickly with a comment about how much he had done and how amazing it was that he was even able to do what he was doing. Before I could even start my sentence, he was asleep. I watched him for a few minutes - his body was so weak, but even that day, I saw my hero and I wanted to be like him.

Dad, I still want to be just like you and I always will. Thanks again for choosing me.

Memorial Day

I know today is meant for remembering those who's lives were lost while fighting for our country so please excuse the "stretch" but my dad was a different kind of fighter; one definitely worth honoring. The last few weeks have felt pretty numb for me. The roller coaster we call grieving has been humbling. I would do just about anything to be back on the bone marrow transplant roller coaster. As the days keep passing, I find myself grabbing onto whatever I can. If anyone still reads this and has a story or experience they'd like to share, I'd love to hear them.

I recently had the opportunity to visit with a bunch of my dad's referee friends and I really enjoyed it. Darlene Patterson, the wife of Paul Patterson is a member of the Leukemia & Lymphoma's Team In Training. She is "racing for a cure" in a 100 mile bike ride at Lake Tahoe. She is riding this race in memory of her father, Jack Davis, who died of cancer and also my father.

Please check out her website here and donate to this great cause.

I've attached a few photos from the field dedication as well as the new logo for my dad's basketball camp.

Ken Waite Field Dedication

Tomorrow is the dedication of Ken Waite Field. All are welcome (and encouraged!) to come!

Click here to read an article in the Daily World outlining the dedication.

Ken Waite Field

The Ken Waite Field Dedication

4:00pm | May 5, 2009

Pioneer Park, Babe Ruth Field

What You Don't Know...

About My Dad.

- He secretly loved music despite being a "jock" his whole life. He used to sing all the time!

- He always gave me high fives.

- He used to always offer me grilled cheese when he was in charge of making a meal.

- He never did my math homework, even when I begged him to.

- His absence hurts more and more every day.

For Good

I've heard it said
That people come into our lives for a reason
Bringing something we must learn
And we are led
To those who help us most to grow
If we let them
And we help them in return
Well, I don't know if I believe that's true
But I know I'm who I am today
Because I knew you...

Like a comet pulled from orbit
As it passes a sun
Like a stream that meets a boulder
Halfway through the wood
Who can say if I've been changed for the better?
But because I knew you
I have been changed for good

It well may be
That we will never meet again
In this lifetime
So let me say before we part
So much of me
Is made of what I learned from you
You'll be with me
Like a handprint on my heart
And now whatever way our stories end
I know you have re-written mine
By being my friend...

Like a ship blown from its mooring
By a wind off the sea
Like a seed dropped by a skybird
In a distant wood
Who can say if I've been changed for the better?
But because I knew you


Because I knew you
I have been changed for good

He Lives On...

The KW Patch in action

Epilogue

I've come to this site many times in the last month wishing I had an update - wanting nothing more than to share another triumph or heart ache in my father's battle with cancer. Often wondering to myself, as I go about the day, is it possible he really is gone and when will he be back?

I've spoken very little about his death in the last month. I think mostly because I couldn't believe it was real myself and when I had those moments of reality, I could hardly speak, let alone share anything that would mask the pain and sorrow I felt.

Initially, the days were busy and the nights exhausting but as things began to calm down and those days have become weeks, I've started to adjust to the new normal. The tears, still wetting my pillow at night, have reminded me of my silent longings for his return.

I've been so fortunate to read so many stories about my dad's life. From the out right hilarious to the inspiring, they have made the road I am traveling easier to move along. I cherish each and every one because they are his story. The story of the greatest man I've ever known. And while this chapter has ended, parts of him live on with each and every one of us who have been privileged to know him.

As we closed a chapter in his story today, I thought it would be fitting to write an epilogue of this journey.

Dad,

I took a drive into town this morning before the service to check on the various places we were going to spread your ashes. It was a beautiful morning! When I pulled into Morrison Park, I could see you edging the grass and working on the playground equipment. No one was around so I sat there for a few minutes and just watched the river quickly move by. I started thinking about all the times we had at the park from Splash festivals to my 16th birthday party at the Log Cabin. From there, I drove up to the high school oak tree and of course, there it was. It was still pretty foggy so you couldn't see much higher than the tree but it looked very stately today. Almost like it stood a little taller, a little more proud. I think the tree knew that soon, you'd become a part of it's foundation. Then I drove over to Pioneer Park and my mind was flooded with so many baseball memories! AHS, The Clubbers, Indian Tournaments, Parks & Rec events... Again, I could see you there mowing, coaching, playing, umping and always smiling.

I think you're going to like being in so many places at once! As we spread your ashes today, I couldn't help but think about the influence you've had on so many people and just how far reaching that has been. Seeing you become a permanent part of much that you've been passionate about your whole life has been a gift for all of us today.

Reality came to a head though when we got to the cemetery for your burial service. I realized that I'm not ready to have you gone from my life. I struggled through most of the ceremony with feelings of sadness, anger and disbelief and then I think Grandma came to my rescue. She helped me feel a sense of comfort and restored a bit of my hope.

After the service, I stood at the top of the hill where your ashes were laid to rest and looked out on a bright, sunny day. I am glad I shared today with you, thanks for sending the sunshine. I wish someone would ask me what I want to be when I grow up because I finally have the answer: I want to be like Ken Waite.

Thanks for choosing me. I love you...

Kristi

Thank You!

On behalf of the entire Waite family, THANK YOU for your love, support, prayers, cards, flowers, thoughts, hugs, words of encouragement, meals... you get the idea.

We are so grateful for wonderful friends and family. Stay tuned for some great stories that we've been collecting this past week about our favorite KenBob! If you have a story to share, please do!

Ken Waite | 1953-2009

Ken passed away this morning at the University of Washington Medical Center.
Truly, a fighter to the end. He is missed already.

Memorial Informtion:
Sunday, January 11th, 2009 - 2:00pm at Aberdeen High School Sam Benn Gym
Reception immediately following in the Commons
410 N. G Street | Aberdeen, WA 98520
Please plan on getting there early as parking and seating are limited.

The ICU

Late last night Ken moved back to the Critical Care Unit because he was having difficulty breathing. They are watching him closely and trying to get his heart rate down and the breathing regulated. He's been struggling with breathing for the past 2 or 3 days and gradually, has been retaining a lot of fluids. They are hoping that if they are able to get rid of the excess fluids in his abdomen thus relieving the pressure on his lungs that he will start to improve.

Keep those thoughts and prayers coming!

Ken managed to stay out of the ICU because the results of the bronchoscopy showed improvement, he go to stay put. He tested positive for a viral infection and a fungal infection (both in the lungs) but it's likely the fungal infection is a false positive due to all the antibiotics he's taking.

As usual, he's continuing on hydration, nutrition and oxygen. He's starting to take more walks around the floor and is eating little bits each day. The viral infection is a cold so they are monitoring him as it takes its course and hopefully he'll get better as the cold goes away.

Monday Roundup

Ken had the bronchoscopy Sunday and preliminary results came back today that didn't show anything conclusive (surprise, surprise) but they will have the final results in the next couple days. He was moved out of ICU this morning into a regular room and was on oxygen, a broad spectrum IV antibiotics, the usual hydration, TPN (IV nutrition), potassium magnesium, etc. all day. However, he was having trouble tonight so they did a bunch of tests as well as a chest X-Ray and have decided to move him back up to ICU. His potassium is extremely low and they can administer that faster in critical care so he's moving back shortly.

Gunk

Our family had a great Christmas minus some minor weather issues but how fun to have a real white Christmas!! Ken handled wrapping all the presents and making the bows (He's quite good at both!) and enjoyed time with family. However, his shortness of breath returned and so he went to UW Medical Center to get checked out and they did a CT scan and it showed more "gunk" (that is the term the doctor used) in his lungs so they admitted him to the ICU and are going to take a sample today to see what's going on in there.

Merry Christmas

From Our Family To Yours.

Wishing each and every one of you a Merry Christmas. We are so grateful for our wonderful family and friends - for all of your love, support, prayers & faith. We have A LOT to be grateful for this year, and always.

Chemo!

Ken met with his doctor in Seattle today and is scheduled to begin his next round of chemo next week! Send lots of prayers and positive thoughts his way, we want the good news to keep coming!

Home, At Last...

Ken made it home last night! That's ALL!

Home?

I know, can you believe it? They are saying that Ken will be able to go home tomorrow! Of course, we're not holding our breath for an early departure but he's extremely happy to be able to get out of the hospital! Once again, thanks to everyone for your thoughts and prayers.

Better Days

Ken is definitely improving day by day and we're SO happy about it! He's had a couple more chest X-Rays that show continued improvement. He's using less and less of his oxygen mask each day and even walked a couple laps around the new floor this morning!

No word yet as to when he can leave the hospital or begin more chemotherapy but that surely will be talked about soon.

The Popular Kid

Ken is clearly the most popular kid at school - he was the first patient moved this morning to the brand new oncology floor at the hospital so not only was he an inaugural patient, he was the first!

The new rooms are amazing! They are almost twice the size of the old rooms and come with a couch that turns into a bed, a flat screen TV, a desk and nice reclining chairs.

Continually Improving

Ken is still improving! (insert round of applause... big round of applause!) Today he had his Hickman catheter (central line) removed because they felt it was possibly the original source of his infection and gave him a Picc line in his upper arm. That is working and he's doing well with it! If all goes well, he'll be able to begin the trial chemotherapy in two weeks! WHAT A MIRACLE!!

He's still in the hospital and they've been able to focus their efforts on specific antibiotics that will kill the pneumonia bacteria. THANK YOU for your prayers, we happily have my dad, Ken, Ken Bob, Mr. Waite, etc. because of the love, support, prayers and laughter of friends and family.

Nothing Short Of A Miracle...

Ken is getting better!!!

His X-Ray this morning shows improvement in his lungs and they feel he will be able to recover from the Pneumonia. Truly, laughter & friends are the best medicine!

Update

Here's a little time line since I last updated the blog...

Ken got transferred from the ICU at Grays Harbor to the ICU in Olympia Monday afternoon. Tuesday morning most of our extended family arrived as well as some of Ken's closest friends and we were all able to have a nice day, filled with old stories and lots of laughter. They've given him narcotics to help him relax and help him breathe easier - it seems to be working well. He was able to rest well when the nurses weren't in the room pestering him. :)

Pneumonia

We brought Ken to the ER about 3:30 this morning because he was having trouble breathing and had a high fever. Now that they've done some tests, they have concluded he has pneumonia. I'll update when we have more info.

Here's that update I was talking about:
Ken was just moved to ICU where he's got the corner room with a stunning view of the Aberdeen skyline. I think it's about 5 times the size of a regular room! He's hooked up to almost every machine possible. Hopefully they can get everything under control soon!

12:00pm Update
Ken is being transferred up to St. Peter's ICU within the next few hours.

Life At Home...

He sits here like this:

Then she does this:

To this:

Then he does this:

Home

As I'm sure you can guess, Ken is SO happy to be home! He's been very productive the past 36 hours - he's watched at least 6 football games from his recliner! Barring any hiccups in his health, he should be home for at least 2 weeks before he starts the next clinical trial.

***UPDATE***

Change of plans - Ken will be coming home tomorrow!! He will be home for approximately 2 weeks before he starts his next trial study chemotherapy at UW. I'm sure as you can imagine, he's VERY anxious to be home! He'll be on IV's 24/7 but knowing Ken, he'll probably venture out of the house!

The Good & The Bad...

Good News: The figured out why Ken has had such terrible diarrhea

Bad News: It's more cancer (in the intestines)

The Practicalities: We don't really know how this affects his chances for a transplant or further treatment but we're hoping for answers and a transfer to UW later today.

Permanent Resident

I keep wondering when they will give Ken a plaque outside his room with his name on it since he's been there so long! Things are not improving so hopefully early this week he'll be moved up to UW Medical Center. He's getting some blood work as well as an X-Ray today because his white count doubled in the last 24 hours. The tests hopefully will show what's going on in there!

Hospital, Day 21

Ken is still plugging along in the hospital but is showing some signs of improvement ... FINALLY! I think all this election mumbo jumbo was stressing him out and now that it's all over, the diarrhea will go away! :)

Ken was able to leave the hospital yesterday for a few hours to attend his mother's funeral in Seattle. It was great being able to finally have the whole family together. I know his dad was so relieved that he was able to be there. He even stayed for an hour after the funeral for a family gathering. They've got him on this crazy diet (I thought diets were for people who needed to lose weight?!) so he wasn't able to eat the fantastic food that others had prepared for the family but we all got a kick out of his gluten-free bread - it was hard as a rock! He made it back to the hospital in the early evening and was actually glad to return. The IV's he gets 24/7 do help his energy/stamina/appetite so it was good for him to get all hooked up again. Thanks again to everyone for their love and support.

2 Weeks

Today marks 2 weeks at the hospital for Ken. He's still showing very little improvement and has all of his doctors puzzled but it just wouldn't be Ken if he wasn't puzzling the doctors! His GI doctor is waiting for more test results to come back from the scope they did last week to get to the bottom of the diarrhea. They've also called an infectious disease doctor to come in and see what he can figure out. He received chemotherapy yesterday and will get another dose on Sunday... so far, that hasn't bothered him.

We sure love our little trouble maker and so does every nurse on the 9th floor of the hospital! He's become quite popular there - most nurses try to beat the others to request him to be on their rounds.

We're going to break him out of jail on Saturday to attend his mother's funeral service. I want to thank everyone for their prayers, flowers, cards and support through this difficult week. It means a lot to all of us. I'm sorry to those who have not gotten their shirts yet, I've passed them on to someone else who can get them sent out in my absence.

Every Day Counts...

Today has been a day I will never forget... The opportunity to share in one of the most private moments of ones life - their death. My grandmother and Ken's mother, Jean Waite passed away this evening surrounded by family. Her death was definitely a surprise and there aren't words to express not only the emotions of a sudden passing, but the subtle reminder of how important each day is for every one of us. I am going to make every day count a little more in honor of the tremendous impact my grandma has had on my life over the years. You're with me forever.

Please keep my dad as well as the rest of his family in your prayers through this difficult time.





For death is no more than a turning of us over from time to eternity. ~William Penn

T-Shirt Update

We just got another batch of t-shirts so those of you who've not gotten your shirts, they should be on the way on Monday! For anyone that still wants to order a shirt, we're stocked!

Ken Update: Nothing has changed - they are waiting on a bunch of test results to see if they can figure out why he's still got so much of the runs.

Please keep Ken's mom, Jean, in your prayers - she had to be taken to the hospital this morning after she stopped breathing while asleep in her home.

Hospital Days...

Ken has now achieved his longest hospital stay in this process - 9 days! We're not seeing a lot of improvement yet, but at least he's not getting worse! Because it's a crucial time for Ken to prepare for his transplant, the doctors are a little worried about him not having any chemo or radiation to keep the cancer at a minimum so it's possible he may start another round of the chemo he did at home on Monday in the hospital. Many thanks again for everyone's love, support & prayers!

We May Have Turned A Corner...

Ken had a great day today! He's looking a little better and hopefully feeling that way too! He's still in the hospital and probably will be there a while longer but has definitely showed some improvement. I'd like to attribute that to Ken Waite Day! :) Thanks to everyone that supported the effort, it means so much to our family.

Ken Waite Day Photos

Click here to email me your photos supporting Ken Waite Day!


If you are not able to see the slideshow above, you can click here
to view all the photos in a gallery.

It's Officially Ken Waite Day!

Show your Ken Waite Pride today by wearing your Humbabe Revolution T-Shirt or Wristband!! If you haven't had a chance to get yours yet, just wear anything red!

There will be a rally at AHS beginning at 2:00pm, anyone and everyone is welcome! We have a big card outside the office - please come and sign it some time during the day. Kaity & Angela did a fabulous job decorating the high school. I'll upload pictures from that soon - Ken is still in the hospital in Olympia but I know he'll feel all of your love and support!!

24 Hours And Counting...

Ken is still in the hospital in Olympia and holding strong. I mentioned last week that this Monday he'd meet with his doctor in Seattle and start the inpatient chemotherapy on Wednesday but that has been pushed back a week. He's not able to leave the hospital yet - he needs to get some strength and hopefully gain some weight before they will even consider the chemotherapy. He's currently receiving nutrition, hydration, nausea medicine and antibiotics in his IV so things have got to start turning around here soon.

We are vastly approaching Ken Waite Day! Click here to read an article about Monday's activities and remember to take a picture wearing your shirt!

Still In The Hospital

But at least he's getting visitors! Check out their shirts!! These two go way back and look who's got more hair now! Ken was such a good friend, he put on Brad's hat so as to not embarrass him.

His Biggest Fans...

Ken's parents with their new Humbabe Revolution T-Shirts!
Shirts will begin their distribution tomorrow - remember, wear them Monday and take a picture!

Ken is being admitted to the hospital, again. He's not able to keep any food down and is consistently loosing weight so this is definitely the right option to help get him stable again.

The Humbabe Revolution!!!

The word is spreading quickly! I just want to give a personal THANK YOU to everyone who is supporting my dad at such a trying time in his life. We are so grateful to have such an amazing "family" here in Grays Harbor!

What do we live for, if it is not to make life less difficult for each other?

Spreading The Love...

I looked at where our recent visitor map today and it looks like the Humbabe Revolution is making it's way across the USA! Remember to get your shirts now, Rally Day is next Monday and shirts are selling out fast! If you can, please take a picture of you wearing your shirt too!

Home!

Ken is home from the hospital now and very happy about it! He's got one more week of radiation before a doctor's appointment to see if he's able to move forward with the inpatient chemotherapy. Ken has a very unfortunate problem - he needs to gain weight! We keep offering to give him ours, but they haven't figured out how to transfer it yet. We try to feed him all sorts of good things like ice cream, milkshakes, pudding, etc. but it usually just doesn't sound good to him... bummer! Any one have weight gaining ideas?

Ken is still in the hospital. His labs have got to get higher before they will let him leave so we're hoping for good results today!

In The Hospital, Again.

I'm here blogging from the hospital - Ken has been pretty sick the past few days and today felt bad enough that his doctor suggested we take him to the ER. A few liters of saline, some hardcore drugs and a few hours later, we're getting admitted. He's got an infection that they are now treating so hopefully he'll start feeling better soon!

Don't forget! Ken Waite Rally Day is October 20th!

AHS showing their participation for rally day!

Let's Be Frank...

I know you care about my Dad, Ken, Ken Bob, Ken Blob, Mr. Waite, Hum Babe, Precious, Kenny, Uncle Ken or whatever you might call him because you're here reading his blog. I've always tried to write this blog in an informative, yet playful manner because that's how the aforementioned man (with too many names) would have it be. However, playful and fun doesn't always get my message across so please excuse the frank nature of this post.

These next two weeks are crucial. At this point in time, Ken is not qualified for a transplant. The radiation therapy and inpatient chemo have to kill his cancer. Period. If these methods fail, we've run out of options and frankly, that's just not ok with me (or you, I'm sure).

Each of you bring your own set of beliefs to the table and regardless of what they are, I'm asking for your help. Whether you pray or send positive thoughts or put on your rally cap, I believe all will work in restoring the health of the man we all love. None of us will ever understand what he experiences day to day in his battle with this terrible disease but there's one thing we can all be a part of and that's a cure. I don't know of a more deserving person than my father so I plead with you for your help. He'll probably nuckle me for posting this but it's the truth and I'm ready for a miracle.

Upcoming Events

Ken began his 2 weeks of radiation therapy on Monday. Thankfully, radiation has no real side effects, rather just time out of each day. He begins inpatient chemotherapy on October 22nd at the University of Washington.

Don't forget - RALLY DAY is OCTOBER 20th! The day before Ken starts his inpatient chemotherapy. Get your shirt and rally along!

The Final Straw...

Alright folks, get comfy because you're in for a long one. ;)

Ken just recently completed 3 cycles of chemo (2 treatments a week for 2 weeks and then a week off). These cycles were done locally which was great for Ken because he was able to work and for those of you who know Ken (probably all of you if you're here), he LOVES to work! He's been awfully busy as athletic director doing things I had no idea were a i the job description - painting murals on the walls (who knew he was so artistic?), washing towels, etc.

The purpose of this particular regimen of chemotherapy was two fold:
1. Get rid of his cancer (Duh?)... not successful
2. Buy time to find a donor... SUCCESS!

Let's start with the good!! A perfect match was found and is willing to go forward with the collection process. For those of you wanting to get added to the bone marrow registry, click here.

Despite the fact the chemotherapy was not 100% successful, it did clear up most areas of his cancer. However, "most" isn't good enough for a bone marrow transplant. Ever since Ken began this fight, there has been two different war fronts - the internal cancer and the external skin lesions. Whenever there seems to be progress with one, he loses ground on the other. Damn cancer is stubborn! At this point, there are two
internal areas and one nasty external area which will now be treated with radiation therapy. (Think tanning bed without the tanning.)

OK, go back two weeks with me now - Ken had PET and CT scans done and then met with his doctor for the game plan. They've been telling us all along that the chemotherapy Ken needs to have right before the transplant would be way tougher than anything he's had so far. This seems so incomprehensible to me considering how tough the chemo was that he had this spring in the hospital. That being said, the doctor feels like Ken would not be able to tolerate this chemotherapy so we're changing gears a bit to what's called a "mini transplant". The transplant itself is the same, the difference is, there is no chemotherapy prior to the transplant so it's imperative that his cancer is in remission or nearly gone.

As it stands right now, Ken has too much cancer to be considered for this procedure. So, plan Z is the radiation therapy I mentioned earlier to get rid of those remaining spots and then 4 days of chemo in the hospital at UW. Of course, once that is done, he will be rescanned and hopefully will go to the mini transplant.

Folks, it's time to rally! The blog has a new red theme; the color assigned to lymphoma cancers. Show your support by purchasing one of our new Humbabe Tee Shirts! The cost (including domestic shipping) is $20 and will be ready to ship next week! For more information, email me here.

Happy Birthday Ken Bob!!

You got that right, it's Ken's birthday today! Everyone send him lots of comments, emails and phone calls.

He started chemotherapy for this cancer last September so here's to a new year full of healing and A CURE!!!

The Newest Waite...

We inherited a new family member over the weekend! Josh married Autumn and we're quite happy with his choice! Congrats to both of you, we love you and loved your wedding!!

Check out the hair!

He's Famous...

Check out the link here!

The Worst News...

Is now in the past.
We're back on track with good news and I have more to tell! Yesterday Ken found out that they found the match in the US - he's a perfect match and is willing to donate! It looks like Ken will have his transplant sometime in the next 6 weeks... stay tuned for more info!

Don't Let Him Pull The "Cancer Card" On You...

Look at how much work he does!





OK, You can feel a little bad for him...

The Three Stooges

Show Yourselves!!

I was looking at how many hits we get a day on this blog (about 150) and realized 2 things:

1. I need to post more!!
2. I want to know who all you blog stalkers are!

Leave us a comment so we know who makes up that 150 a day. :)

FINALLY!

We have some GOOD news to share... Ken went to get the results of his PET scans yesterday and this chemo is actually working and is killing the cancer! We will move forward doing more of this chemo, still hoping the donor will be able move forward. Keep your fingers (and toes) crossed!

Chemo & Typing

Things are moving along here in Aberdeen - Ken has been home for a few weeks pretending to lead a normal life. He goes to work everyday, comes home for lunch and rests for awhile and goes back to work in the afternoon. He has just finished one cycle of the new chemo. One cycle consists of 2 treatments a week for two weeks. This is the treatment Ken's doctor in Seattle recommended. Ken asked if he could do his treatments in Aberdeen and the answer was yes. Obviously, he was VERY happy about that! Next week is an off week from the chemo and Ken will have CT scans in Aberdeen to see if this chemo is working. If it is, he will continue with at least one more cycle. If it isn't working, we'll move to plan B, more like plan R. ;)

We received the results from Jim's (Ken's other brother) HLA typing and he's also a 7/10 match with Ken's. Not considered good enough. Meanwhile, Ken's HLA typing has been entered into the worldwide database and 12 potential donors have been identified. Fred Hutch would like to line up a primary donor and a backup and is asking for further typing on Ken and the primary donor. They seem to have a good lead that they are trying to pursue so keep your fingers crossed! ... And enjoy that beautiful sunshine!

Today Ken went to his local Oncologist and will begin his next round of chemotherapy on Monday, August 4th. He will have treatments twice a week (Monday & Thursday) for two weeks, then take a week off and repeat same chemo regiment. After the second two week stint, he will have PET scans to reevaluate the cancer.

Ken is most happy that he'll get to do this treatment in Aberdeen so he can continue with his regular activities.

Our guitar hero:

Mr. Chemotherapy

Ken met with Dr. Shustov today to discuss the action plan as we move forward here. He will begin chemotherapy that includes two drugs, given twice a week for two weeks and then have the third week off. During the week off, he'll have his PET scans repeated to see if the cancer is shrinking or growing. If it is shrinking, they would do one more cycle but if it's not working,the would move in a different direction with a much stronger chemo.

Luckily, he can have these treatments done in Aberdeen starting on Thursday. On a not so lucky note, one of his brothers HLA typing (donor testing) came back not so good. He was a match in 7 out of 10 but the concern there is the likelihood of of the new cells attacking Ken's body is pretty high. It is possible to bypass that problem by using some drugs but they will wait to see how his other brother matches up. If that doesn't work, they will definitely move to the world wide donor bank to find the donor. This process will take up to 12 weeks as they have to find a match and then go find the person, retest them and also test for HIV, hepatitis, etc. I can just see it now... they literally have to track down some man in outer Syberia!

Ken, The Problem Child

He's done it again... Baffled the doctors, flunked the tests, WHAT ARE WE GOING TO DO WITH HIM!?!

Ken had PET and CAT scans yesterday and when he met with the doctor today, they said there are new cancer spots that have developed in his pelvis. His doctor is going to take a few days to discuss with colleagues and formulate a new plan to get rid of the existing cancer. Most likely, it will entail chemotherapy that will begin ASAP. We'll know more on Monday at his next appointment.

The bone marrow transplant is still in the future, the cancer just has to be as gone as possible to make that happen.

Life At Home

Ken and Jill arrived home on Thursday afternoon and will be able to stay home until they leave Tuesday night for Ken's Wed morning appt. in Seattle. Ken will have PET scans on Wednesday and see the Dr. on Thursday for the results and a new game plan. Meantime, Ken's 2 brothers went through the preliminary blood work to see if they are potential matches for donor stem cells. Cross your fingers!!

Update!

I didn't realize how long it had been since I updated the blog - I'm sorry all you blog readers!

The last few days have definitely been blog worthy but somehow I was neglecting my blog writing duties... Early this week, Ken was STILL trying to collect those damn CD34 cells but unfortunately, they just weren't climbing fast enough or consistently so they had to flunk him out of his his first semester of Fred Hutchinson High School (bone marrow transplant with his own stem cells) but fortunately with the No Cancer Patient Left Behind Act, Ken has now moved on to his second semester - a transplant with donor stem cells. Just like with any schooling, you don't just get to skip to the final test (the actual transplant), you have to go through the entire semester of tests, work, etc. However, this time he has the help of tutors (hopefully one of his brothers will be a match) so we'll see where that takes us. A sibling has a 25% chance of being a match and I figure, that's better than 20% or 10% so we're in good shape.

In the mean time, Ken is at home and VERY happy to be there. He's been able to work a bit at the college and at home as well as sit outside and enjoy some of the great weather we've been experiencing recently. He has an appointment Monday afternoon with his chemotherapy doctor to come up with a plan to further prepare him for the pending transplant.

Thanks for being patient blogland - We won't wait so long to update, I promise!

Sunday Fun

After Ken's morning blood counts, he got a surprise visit from Eric & Carrie Snell! Ken, Jill, Eric, Carrie and myself all went out to Stanfords for lunch and Ken had a great time. (Everyone had a great time but I know you read this blog for him, not us...)



His CD34 counts are playing bouncing back and forth, we're hoping for higher numbers today so they might be able to collect stem cells some time this week.

CD34

It seems that some wires got crossed in Ken's body! His CD34 count is going down instead of up. We're hoping to figure out how to turn that around. Other than that, the other counts are are doing well!

Still Climbing...

Well, his CD34 count is climbing! This morning he was at 1.5 - only 8.5 more to go! Sheesh. Seriously, can people donate this stuff?

Anyone Have Spare CD34?

If so, please call Ken, he'd like to borrow. :)

The CD34 counts are climbing... slowly. Hey, but at least they are climbing, right? When the nurse said he tripled his count at this morning's blood draw, I thought great! Let's collect! No such luck... he went from .22 to .66 and has to get to 10 so it might take some time before we're ready for harvesting. However, they have decided to double the amount of growth factor shots he gets each day so now will receive them in the morning and in the evening.

We'll see where we are tomorrow, if we keep tripling the CD34 everyday, we might actually get to the harvesting late this week/weekend!

Stem Cell Collection

We were hoping for stem cell collection today but no such luck. Ken's white count is shooting up and the nurse is optomistic that the CD34 count get higher too but just not enough yet. Lab results this morning show that Ken's magnesium is low so off to the 5th floor to get an IV of magnesium.

Fun with Girls!

Today turned out to be a LONG day but there are rewards for those who are patient! :)

Ken gets blood tests every morning to see if he's ready to begin harvesting the stem cells. As it has been each day prior to now, he was not quite ready and needed more blood/platelets to boost his counts which makes for a long day.... waiting, waiting, waiting and then when he finally gets the blood, it takes a good 6 hours to administer.

I (Kristi) love surprises and love to surprise other people! So... I was planning on visiting my parents anyway so I brought along the AWOG's (Melanie, Judi & Jeanette) to visit with my mom! It was a beautiful afternoon so they down to the waterfront and had lunch while my dad and I watched monster trucks smash cars while he was being infused.

All in all, Ken and Jill put in 11 1/2 hours and were so happy to be done!

Who Would Have Known...

Today was a fairly mellow day for Ken and Jill - Ken received 2 blood transfusions and had his daily blood work which all in all, took most of the day. To escape hours of white walls and beeping machines, my mom often goes on a walk mid day. Well, today she walked partly around Lake Union and decided to get some lunch while she was out.

I NEVER thought I'd hear my mom say the words, "I went to Hooters for lunch today!" Are you kidding me?! Of all the wonderful places around Lake Union, she chose HOOTERS and to top it off, she went by herself!

HAHAHAHAHAHA. I am seriously still laughing and I think my dad is too. I'm sure he wishes he could have been there!

After getting done at Fred Hutch, they went out to visit Todd & Sheila. It was so nice for him to get outside and have some fresh air and visit with family.


***Editors Note*** My mother would like me to tell everyone in blogland that she didn't stay in Hooters to eat, she just got a cup of chowder to go. :)

Backpack Full 'O Fluids

We started out at the Hotel UW and now have moved to Fred Hutchinson High School. You know, Ken's been done at AHS now for about a month and I think the doctors figured he missed it so they decided to attach a backpack to his back that he wears all the time (filled with saline and potassium) to keep him hydrated and in touch with his inner high school child.

He's currently spending A LOT of time at Fred Hutch - some of the days are longer than regular work days for him and Jill is overwhelmed by all the "homework" they get! Every day she is given either a spiral notebook or 3-ring binder full of information about upcoming procedures and the bone marrow transplant.

His blood counts are still very low from the chemotherapy. He has lab work done every day so they can stay on top of the low blood cells and will be receiving 2 transfusions of red cells tomorrow. Daily, he receives a growth factor shot to boost his counts and get his bone marrow working in hopes that they can harvest stem cells sometime in the middle of next week.

No rest for the weary bone marrow transplant patients - he doesn't even get weekends off! As I mentioned before, he gets transfused tomorrow and there's more to do Sunday.

Fluids, fluids and more fluids!!

I think Ken has turned into a human sponge!! He gets more fluids than anyone I've ever seen and it's still not enough and you know what's even crazier, he still LOSES weight!

He was supposed to begin work with the transplant team yesterday, harvesting stem cells along with a laundry list of tasks but has yet to begin that as his body is still trying to recover from the chemotherapy. As each day goes by, I realize more and more what a long road we're on. The transplant team at Fred Hutchinson is AMAZING - We are extremely happy with all of the doctors, nurses and staff. He's still in good spirits and hopefully will begin the harvesting tomorrow.

Down Goes Kenny!

Apparently this is a boxing reference and I'm "too young" to remember but my dad fell last night and all he can say is, "Down goes Kenny!" Don't worry, he's fine - he's just not good on his feet!

He was released tonight around 6:00pm and is so happy to be out of that hospital! He begins a rigorous schedule tomorrow at SCCA for the pending transplant. There should definitely be more to update after his first day.

Update...

Looks like today will not be a release day for Ken. Yesterday was pretty uneventful for him; he was really tired and slept most of the day. He finished all the chemo without getting sick too many times but when they checked his vitals in the middle of last night, his heart rate was very low so they ordered an EKG which showed some irregularities. They will check that again later today to see how he's doing.

He also had a low enzyme level, which can actually be due to tumor cells dying off but none the less, that can still cause some problems so they will give him something to normalize that.

On a lighter note, we've now moved into the "L" nurses: Liz, Lee & Linda!

Chemo, Part Deux

Ken is back at UW for round 2 of his chemotherapy. It's much like last time - waiting, waiting, waiting! He's on his 2nd drug now and they've been giving him so much anti nausea medicine, he pretty much sleeps all the time. We're very happy to have the same team of doctors as he did the last time he was in the hospital. If all goes well, he'll finish all the chemo tomorrow evening but most likely he won't leave the hospital until Sunday.

The Bald Man's Club

NEWS FLASH: Brad Fuhrer has just been unseated as King of the Bald Man's Club.

More hair was falling out than was left on his head so he decided it was a great time to reclaim his kingship of this elite club.

He's now waiting for Peterson and Ruecker to shave their heads in solidarity.

Work-a-holic!

Ken has LOVED being able to work the last couple of days. Today, the "3 stooges" (Peterson, Ruecker, Waite) were all in full force at GHC. He's also going to work tomorrow before he has to go up to UW on Thursday. I'm thinking it would be beneficial for UW to hire him as their athletic director as he spends so much time there! Scott Woodward, WATCH OUT!

Yesterday Ken went to a doctor's appointment with the doctor who pretty much runs the show for the chemotherapy and the transplant. Everything remains on schedule despite his recent hospitalization for fever, infection and dehydration. He begins the next round of chemotherapy Thursday but this time, they are going to really pump his body full of fluids and anti nausea drugs. In fact, he's starting the anti nausea meds today!

He checks into UWMC on Thursday morning and if all goes well, he'll be done some time on Saturday!

Happy Father's Day!

Shout out to my dad - Happy Father's Day! He's doing well and enjoying being at home! His energy and diet are definitely improving daily.

Home, Sweet Home

This picture was taken shortly after my dad said, "I think I'm going to go into work for a while!" ... Maybe he's working in his sleep?

Home At Last!

He's been home 10 minutes and is ordering me to update all you in blogland that he's made it home. Thanks to everyone for your thoughts, prayers and emails!

Home Stretch...

If all goes as planned, Ken will be released from the hospital today! They have his fever, blood counts and infection all under control so its just a matter of signing him off... CROSS YOUR FINGERS! :)

The Hotel UDub

Yup, we're still here. Ken gets a little closer to getting out every day (but who really knows). He's had plenty of company from various people and always enjoys it.

Night time is rough around here - they wake him up which seems like every hour. Last night he got to sleep around 10pm but they woke him up at 11, 12, 1, 2 and 3! Good thing he sleeps most of the day cause he doesn't get it at night!

TV around here is getting a little boring - He's found a station that plays old tv reruns so we spend a couple hours a day doing Leave it to Beaver, then Mash or Perry Mason, Bonanza, the Beverly Hillbillies and Hogan's Hero's. However, it is better than watching soaps.

The M's play again today at 4, hopefully they don't lose resulting in his blood counts dropping again since we've finally got them in a "safe" place.

Hey says he's about 2nd or 3rd shelf from the top so we're getting there! Cross your fingers that he'll be home tomorrow!

Back To The Hospital...

Ken is headed back up to Fred Hutchinson today. One side of his port is plugged and has been really lethargic so he's got to go get checked out. Hopefully he won't have to be admitted so stay tuned...

**UPDATE**
He's now been readmitted to UW Medical Center. His blood counts are in the basement and somehow he's dehydrated but I swear, all he does is drink gatorade! We'll write again later after he see's a doctor.

TGIF

We've made it to Friday! Ken is learning his limits more and more each day and is doing well with what he can do. It's nice to have a Mariner's game on today so he doesn't whine about not being able to watch a game on his HDTV. So far so so good: 6-0, M's.

He was able to go into the college for about 45 minutes and meet with Wes. It was nice for him to be able to get out of the house for a bit but was also glad to get home and take a nap. That Wes can really wear you out!

One Day At A Time

Last night Ken went on his first outing since leaving the hospital! We took him over to Eric & Carrie Snell's for a short visit and then on to Melanie & Denny Bickar's. All in all, he was out about an hour and felt good as long as he was sitting. :)

Today we took him to get a blood test today and his blood counts were strong! After the nurse told him the good news, he turned to me and said, "Geez, what will I feel like when my blood counts are bad?"

Although he doesn't have the energy to go for or do too much, he is getting some work done at home and is SO happy to have his laptop to be able to communicate for work and otherwise and the rest of day he spends ordering me (Kristi) around!

A Few Pictures...

Day 5 (June 2, 2008) - Free, At last!

Hi Blog Friends ...

We're out!! Ken was able to leave the hospital this afternoon and is SO happy to be home watching the Mariners on his HD TV!

However, he's still working out the abs. For all you porcelain worshippers, you know all about working on the abs. : ) Despite the nausea, he is so happy to be at home, in his own space and even a mowed lawn (thanks Marc)!

Thanks for all the well-wishes, prayers, cards, calls & emails!

Day 4 (June 1, 2008)

Yes, we're still here and Ken is going to stay another night. Today he says he's "middle shelf" ... Hopefully we'll be back up to top shelf as soon as we can get the nausea handled.

Other than that, nothing is really going on. Lots of sleeping, lots of throwing up. We've moved into a "J" stretch of nurses today... Jen and now Jessica. What will it be for our night shift? Julie?

Oh, and it really doesn't help that the Mariner's lost again today! Damn! Hope everyone is doing well and enjoyed a decent weathered weekend!

Day 3 (May 31, 2008)

Today hasn't exactly gone as planned...

Instead of going out boating on Lake Washington, running around Husky Field and eating a steak dinner, we're still here in the hospital with a sick KenBob. :( Today has pretty much gone like this:

Kristi: How are you feeling, Dad?
Ken: Top Shelf
Ken: (throws up)
Kristi: Top shelf, huh?

... a short while later ...

Kristi: Do you feel nauseous?
Ken: Well...... no. (In a somewhat sheepish voice)
Kristi: Are you sure?
Ken: (throws up)
Ken: Top Shelf
Kristi: Riiiiight... Top Shelf.

{repeat a few times over}

Day 2 (May 30, 2008)

Once again, A LOT of waiting.

Thursday night's chemo started so late, it pushed us back on Friday as well. He wasn't able to begin the "big bertha" of this 3 day chemo until 9pm at night so not much to report for today.

Ken's been quite impressed with the variety of foods available: Ivar's Clam Chowder, Pacific Northwest Salmon, Thai Basil Stir Fry, Apple Pie, Ice Cream, Cheesecake, etc. He was able to enjoy this great menu for about 24 hours but now that he's begun a large portion of chemotherapy, what's on the menu doesn't seem to make much of a difference so we eat for him! :)

We continue to have "M" nurses in the room and when their names don't start with M, he just changes their name to begin with M. (ie: Jen is now Men.)

Thanks to everyone for your support, prayers, emails, calls, etc.

Day 1, Part II

Typed by Kristi, Dictated by Ken

Jill and I arrived at 9:00 for a 9:30 appointment and we waited in 2 different waiting rooms for over 2 hours. How do you get that far behind at 9:00 in the morning? The procedure finally began at 11:30. I had a Double Short Hickman (port or central line) surgically implanted in my chest for all drugs and blood tests. One thing I was disappointed with in the hospital was of the first 8 nurses I met, 6 of them were GUYS! There goes all my fantasies. I was planning on sleeping during the procedure, but we have learned that when I get sedated, I start talking and don't stop. So, remember through all this you can't eat 12 hours before the procedure so I hadn't eaten since 9:00pm Wednesday Evening. When I got out of the procedure, they told me they were so busy in the hospital they gave away my room so they put my bed in a little bay so the nurse tries to get me some food. They said I couldn't get one because I wasn't admitted to the hospital ... that wasn't my fault, they gave my room away! In the meantime, I'm starving to death and I haven't even had chemo yet. Jill went to admitting and they said they would give her a $20 voucher if lunch didn't show up within 30 minutes. Well, lunch didn't show up. By this time, Jill is ready to kill. She went and got me lunch with the voucher and no sooner had I finished that lunch, my lunch from the kitchen showed up. I want from rags to riches in a matter of minutes.

I was supposed to be admitted to my room at 1:00pm but of course, that didn't happen until 3:30pm. Once I got settled in my 7th floor penthouse (minus the flat screen, king sized bed and other luxuries), no one showed up for hours so we began to think this was do it yourself chemo therapy. ! The chemo was supposed to begin early evening but I didn't have any drugs until 9:00pm. One good thing was that when I got to the 7th floor, the nurses drastically improved - WOMEN!!! Not only that, they all started with "m" - Melissa, Michele (one L like Michele Duncan), Mary and Marilyn. Margo, are you interested in becoming a 7th floor nurse?

I know how Harley feels waking up every 2 hours - They woke me up at 1, 3 and 5 to take my vitals and make sure I was still ticking. They say the first 24 hours was supposed to be my "easy" day. It's now 2:00pm and I haven't done jack squat! HA! I am supposed to start a 24 hour chemo starting around 4pm this afternoon which means it will really come late tonight and who knows when I'll get out of here! If I'm released tomorrow evening, I'll stay in Seattle Saturday night and go to Aberdeen Sunday morning.

Thanks to everyone for your thoughts and prayers - I've had a lot of phone calls and emails. I LOVE having this laptop to be able to communicate with everyone. Wrestling it away from Jill can be difficult. :) Mariners are on at 7:00pm and I'll definitely be watching. GO M's!

Day 1

Well, today turned out to be A LOT Of waiting... Ken didn't start his treatment until after 9pm tonight but luckily this first dose is just an hour so he'll be done soon and able to go to bed. He just wishes he was home watching tv on his new flat screen instead of in a hospital room! So far, all is well!

Hum Babe!

Welcome to the new blog following Ken through the bone marrow transplant process! Updates will be posted often so come again soon!